BACKGROUND: Living with Parkinson disease PD is complicated by an unpredictable disease course which can delay planning for future needs. ...When exploring the concept of a PD roadmap, five themes emerged: I desire for a comprehensive tool for future planning, such as a roadmap, II care partner preferences for specific future planning, III PD related life changes as opportunity for future planning and decision making, IV cues from family, peers, and medical professionals about "location" on the roadmap, and V opportunities and challenges to integrating a PD roadmap into patient centered care. ...